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Cancer News

Cancer Advocacy Groups
Share Your Story
 

Personal stories about cancer can have a profound influence on those talk with.  Whether the goal is to educate, raise awareness or raise funds for a cause, you can give a face and voice to cancer by sharing your personal story about how it affected you or your family.  Advocacy groups are always looking for people who are willing to recount their personal stories and to participate in group and community events.  If you are already a member of the group it is important that you share your own individual story as well as to find a voice, or representative, within the group to represent everyone's thoughts. 

 

 
What is Advocacy?

Advocacy is a strategy used to influence policy makers when they create and put laws and regulations into action, distribute resources and make other decisions that affect peoples' lives.  The principle aims of advocacy are to create and reform policies, and ensure that they are implemented.  There are a variety of strategies used by advocates, including:

1.  Discussing problems directly with policy makers,

2.  Delivering messages to the policy makers and community through the media, and

3.  Enhancing the ability of local organizations to advocate for others.

Registry Mindset is dedicated to helping cancer registrars, healthcare providers, patients and their communities.  Advocating for oncology informatics, cancer and healthcare issues as well as patient rights and education is important.  The materials presented here are designed to help individuals get involved and to advocate for issues that are important to them. 

We welcome any comments, suggestions, or feedback you may have regarding our content here and ideas for making it better.  Click here to send us a message.

 
Find an Advocacy Group

When you want to join an advocacy group it is important that you select a group that shares your same concerns and philosophy.  We recommend that you review the different resources below and the individual groups that are linked to them.  Make sure that you read about the activities and issues that each group supports.  When you find a group that reflects your same concerns and philosophy, sign up and actively participate in their events.  Here are just a few of the different cancer advocacy groups you can find on the Internet:

 

American Association of Cancer Research (AACR)

American Society of Clinical Oncology (ASCO)

Association of Community Cancer Centers (ACCC)

Cancer Index 

Dr. Susan Love Research Foundation

Facing Our Risk of Cancer Empowered (FORCE)

Office of Advocacy Relations, National Cancer Institute

Komen Advocacy Alliance

 

 
Speak Out

  

 
Advocacy Activities

Cancer advocacy includes a wide range of opportunities for people who want to get involved with cancer issues and to contribute their time and energy to the community or their profession, such as the cancer registry.  Advocates or staff for nonprofit organizations and have varying levels of training or professional expertise.  There may be formal or informal training programs offered to help teach people how they can effectively participate in advocacy activities.  Here are just a few ways the cancer registrar can get involved:  

...discuss and establish the issues or concerns specific to your professional group and industry, 

...educate others and help to raise awareness about cancer,

...provide support for people who have been diagnosed or otherwise affected by cancer,

...contacting elected officials regarding laws relating to cancer,

...improve care for patients by promoting the value of the cancer registry,

...reduce disparities in access to care or treatment information,

...participate in the research peer review process (i.e., IRB),

...facilitate, promote, or raise money for research,

...promote patient participation in research,

...distribute research findings from your registry's data,

...promote oncology informatics,

...talk about and promote the role of the cancer registrar.

 

 


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